This blog is a chronology of our story and should not be used as the basis for medical treatment or diagnosis. From time to time, you will find links to other websites that we have found helpful, however we offer no guarantees as to the accuracy of these websites. At all times, please use your own good judgment and the advice of qualified medical physicians and specialists.

August 27, 2007

Tuesday, May 11, 2010

Well, its Monday. Tomorrow is our last day of 16 hour nursing care. Then we have a week of 8 hours, at night. Then if the insurance company has its way, we will be cut off. We are doing everything we can think of, and we have called in all the resources we can imagine, but so far no luck. We aren't giving up though.

We'll keep you posted, but if we lose the nursing, a lot will have to change for the next few months. Michael cannot be unobserved because of his inability to cry and his risk of aspiration if he vomits because of his reflux. It means that when there is no nurse (like tonight because she is sick) there is not a lot of sleep going on for Mom and Dad. (And you thought it was hard to take a shower with a typical baby in the house, eh?)

Thank you all for your calls, thoughts and prayers in this difficult time. At the end of the day, he will be well, whole, and ready to take on the world. We just have to get him through the next 8 months or so. In the meantime, at least he is home here with us.

All our love, Megan, Adam, and Michael.


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