This blog is a chronology of our story and should not be used as the basis for medical treatment or diagnosis. From time to time, you will find links to other websites that we have found helpful, however we offer no guarantees as to the accuracy of these websites. At all times, please use your own good judgment and the advice of qualified medical physicians and specialists.

October 5, 2007

Wednesday, May 26, 2010

Well, it has been a nerve wracking morning. Somehow, the humidifier wasn't working right last night, and the weather today is heavy, and this has collaberated to mean a very bad morning for Michael and a scary day for Mom.

The humidifier was working last night, and it is working now, but at some point last night it stopped. Michael didn't give any sign of distress until he sat up for breakfast. At first he was fine with loose secretions, but then suddently it was coughing, wheezing, and some gasping. Suctioning him brought up thick, thick secretions that were hard to dislodge. He sounded like a kid with asthmatic bronchitis.

So, we called the urgent care hotline. No real worries at that time, but Michael did not improve the way he should have. We changed his trach and got some relief, but there was no blockage in the old trach, so we aren't sure what improved. Now, he is making all kinds of sounds with his vocal cords -- very unusual for Michael. A nyway, after numerous calls to various doctors, we're off to see Dr. C____ in about an hour and a half. The vaccination previously scheduled for today has been canceled, for the second time. Is there a message here?

We'll keep you posted. I'm sure things will be fine, but it is an adventure, isn't it? I think Michael was trying to be contrary, since he got such a clean bill of health yesterday from the lung doctors! (And that is what I THOUGHT I was going to be talking to you about!)


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