This blog is a chronology of our story and should not be used as the basis for medical treatment or diagnosis. From time to time, you will find links to other websites that we have found helpful, however we offer no guarantees as to the accuracy of these websites. At all times, please use your own good judgment and the advice of qualified medical physicians and specialists.

October 25. 2007

Saturday, June 5, 2010

WE HAVE A DATE! Keep your fingers crossed that we are all still healthy, but Michael is scheduled to be back under the knife on December 20th. What a great Christmas present -- a whole new palate!

It's funny, but this past weekend I found myself singing, "Because we need a little Christmas, right this very minute ...." How fitting.

So, the moral of the story is, if you are coming to visit Michael, PLEASE GET A FLU SHOT. Also, if there are sick folks in your house, we ask that you not visit. I realize this is a pain, but we must insist because we need to limit the things Michael is exposed to. With his open airway, it is way too easy for Michael to get sick.

On other news, we will be upsizing Michael's trach in a few weeks. He is switching from a Neo Bivona 3.0 to a Pediatric Bivona 3.5, for those of you that are curious. The "Neo" versus "Pediatric" tells you how long the trach is. The "Bivona" is a type of trach that Michael uses, and the "3.0" versus "3.5" tells you how big the airway is. According to the pulmonologist, Michael is doing great, and we will be starting experiments with the Passy-Muir speaking valve once the new trach is in. We'll have to keep you posted on that.

Thanks, all. Onward and upward.

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